CDSA & Fantastic news! :)

So the CDSA came yesterday, they are the Children's Developmental Services Agency. That is where I worked when I graduated college. They provide early intervention services to children who have or are at risk of having developmental delays. They will be with us until Lillian turns 3. If she ends up needing speech therapy that is who it will come from, although I hope she wont need it. This visit was for initial paperwork and next time they will do a full developmental evaluation on her, usually this is to determine if a child qualifies for their services, but since Lilli has a diagnosis she is automatically eligible. Since she already qualifies I could decline the eval. I already know she is advanced (not being biased, she really is our other therapists say so too) but we are going to go ahead and go through with it to see how she progresses over time. They will be done every 6 months. We also got a call from Dr. Tom (the audiologist) yesterday saying that they FINALLY got the denial letter needed from our insurance company to submit all of the paperwork to the state. He submitted it yesterday and we are just waiting on that to come back and that agency (NCEI-DHOH see previous blog if you need a refresher) will pay for her hearing aids. :) YEY! It could take up to 30 days for that to come back, but I am praying for about 2 week turn around time, we(yes we, I get an ear mold too) get fitted and then it will be about a week and she will have her new baby ears!! If you are wondering why I get an ear mold it is so I can check her hearing aids to make sure they are working properly and sounds arent too soft/loud etc. I got our EOB in the mail today showing our denial, the total cost for her first pair of HAs is 3000 dollars, that is CRAZY!!! What sucks is so many people out there do not know about the agencys out there to help w/costs. Also, they only cover through age 3. There is another program we will be admitted into after that, and that covers costs until she is 21. Hopefully by then there will be other options similar to the BAHA (Bone anchored hearing aid)which can be done at age 18. Another sad part to this is that hearing aids are crazy expensive and NO insurance companies help w/the cost. As of Jan 2011 they will be required by law to cover for people under 22 but still that leaves so many people stuck w/ crazy costs just to help them hear. The health care system is so messed up, I dont care who is in office and what promises they make, insurance companies rule the world. Whether it is hearing issues, other conditions even birth it is wacked out! While I am glad we decided to have a hospital birth, I understand why my cousins say homebirth is cheaper and birth is truly a business when done in the hospital! Anyways, that is my political/economic soapbox. I could start a whole different blog w/all my theories regarding those issues! LOL Anyways, back to the subject at hand, it is a hurry up and wait process but we are almost to the end of the first part of this journey. After we get her new ears, we have a whole new world that will be opened up to all of us! Again I cannot tell all of you how much each of you mean to us, how your prayers and encouraging words get us through the times that can be a bit challenging and how blessed we are to know that the Lord chose us to raise this wonderful little girl! It brings tears to my eyes to think of how far we have gone in these short 15 weeks and how I love her more and more each and every second! I cannot wait to know she is hearing me LOUD AND CLEAR each and every time I tell her I love her, which is like a gazillion trillion times a day!