Overwhelmed

Today Lilli had DHOH therapy. She was asleep for most of it which gave Kristen and I a chance to go over some resources and other information. I dont know why it hit me so hard today. I have accepted Lilli's condition and am totally OK with it. First of all there is just something about the word "deaf" that I just cannot stand. My child isnt deaf, she can hear, she is just hearing impaired, yet almost every pamplet emphasized the word deaf. Kristen is very aware of our feelings torwards that word and doesnt use it with us which I love! :) She is a very caring person and I feel she goes out of her way to satisfy us as a family. The information she gave us (was a lot!) but so far what I have seen is very helpful. But today I just had to stop and breath for a minute, remind myeslf that there is a purpose in all of this and no matter what Lillian is still perfect. Going over all the information I was hoping she would wake up so I had an excuse to get up and pick her up and hold her! I didnt want to wake her up from her rare nap. Luckily she did wake up and I got to hold her and smooch on her! She is my world and I want to do EVERYTHING in the world for her which is why I am very greatful for all of the agencies we are working with, but I just had to get it out of my system that today was a kind of hard day. When Kristen left my sweet husband watched Lilli so I could take a nap before he left for work. I am such a lucky woman to have such a wonderful family! :) I couldnt ask for more! Now excuse me, I have to sign off, my sweet girl is waking up again LOL